Exposures: I Care: Daughters' illness spurs fight against cystic fibrosis
02/04/2013 12:00 AM
02/04/2013 9:51 AM
Strong-willed Taya Wieler, 2, struggles as she receives treatment to keep her lungs clear of a thick, life-threatening mucus caused by cystic fibrosis.
Her mother, Amy Rovai-Wieler, patiently administers the medicine while her healthy daughter, Teagan, 5, cuddles them.
Teagan's twin, Taryn, also has cystic fibrosis.
The pair must receive the 20-minute treatment up to six times daily.
Though the median age for survival for cystic fibrosis is 37, many die sooner.
A simple winter cold can kill. To combat the disease, Ravai-Wieler has become an active fundraiser for the Cystic Fibrosis Foundation, which funds research for a cure.
She has chaired the Great Strides walk for CFF in Sacramento for years and she founded Couture For A CF Cure, a website that sells handmade bows and other children's accessories.
"It's added a purpose to everything we do," she says. "The girls have learned it's important to be advocates and give back."
To purchase children's accessories to support CF research, visit www.coutureforacfcure.com.
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