Exposures: I Care: Daughters' illness spurs fight against cystic fibrosis

02/04/2013 12:00 AM

02/04/2013 9:51 AM

Strong-willed Taya Wieler, 2, struggles as she receives treatment to keep her lungs clear of a thick, life-threatening mucus caused by cystic fibrosis.

Her mother, Amy Rovai-Wieler, patiently administers the medicine while her healthy daughter, Teagan, 5, cuddles them.

Teagan's twin, Taryn, also has cystic fibrosis.

The pair must receive the 20-minute treatment up to six times daily.

Though the median age for survival for cystic fibrosis is 37, many die sooner.

A simple winter cold can kill. To combat the disease, Ravai-Wieler has become an active fundraiser for the Cystic Fibrosis Foundation, which funds research for a cure.

She has chaired the Great Strides walk for CFF in Sacramento for years and she founded Couture For A CF Cure, a website that sells handmade bows and other children's accessories.

"It's added a purpose to everything we do," she says. "The girls have learned it's important to be advocates and give back."

To purchase children's accessories to support CF research, visit www.coutureforacfcure.com.

To suggest a community volunteer for the I Care column, contact apayne@sacbee.com


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