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  • Parents share challenges they face with children who have rare genetic mutation

    In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCarty of Fresno came with their son, Liam. The mutation is on a gene known as PPP2R5D.

In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCarty of Fresno came with their son, Liam. The mutation is on a gene known as PPP2R5D. Dan Morain The Sacramento Bee
In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCarty of Fresno came with their son, Liam. The mutation is on a gene known as PPP2R5D. Dan Morain The Sacramento Bee
Dan Morain

Dan Morain

Editorial page editor, political affairs columnist and editorial writer

Their son has a rare genetic disorder. But here’s why they don’t give up hope.

August 12, 2017 06:30 AM

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  • Parents share challenges they face with children who have rare genetic mutation

    In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCarty of Fresno came with their son, Liam. The mutation is on a gene known as PPP2R5D.

About This Blog


Dan Morain has been a columnist for The Sacramento Bee since 2010, focusing on state government and politics. He previously worked for The Los Angeles Times, covering the California Supreme Court when Rose Bird was chief justice, the Legislature when Willie Brown was speaker and the governor's office during Gray Davis' tenure. Dan Morain can be reached at dmorain@sacbee.com or 916-321-1907. Twitter: @DanielMorain.