Parents share challenges they face with children who have rare genetic mutation

In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCart
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In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCart

Their son has a rare genetic disorder. But here’s why they don’t give up hope.

August 12, 2017 06:30 AM