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  • Parents share challenges they face with children who have rare genetic mutation

    In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCarty of Fresno came with their son, Liam. The mutation is on a gene known as PPP2R5D.

Parents share challenges they face with children who have rare genetic mutation

In August 2017, families with children who have a rare genetic mutation gathered with scientists at a hotel in suburban Washington, DC, at the invitation of Sacramento lobbyist Joe Lang, whose daughter Jordan has the disorder. Will and Lisa McCarty of Fresno came with their son, Liam. The mutation is on a gene known as PPP2R5D.
Dan Morain The Sacramento Bee