Ben Fallstead, 28, was diagnosed several years ago with babesiosis, a tick-borne disease that left him exhausted, wracked with fevers and chronic joint pain and unable to hold a job.
After going through several antibiotics, his specialist prescribed one that brought him some relief.
“I was just getting to the point where I felt semi-normal,” he says.
But early last year, his managed care Medi-Cal plan told him it would not refill the medication, saying that it doesn’t support the long-term use of antibiotics, he says.
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Since then, the Lake County man has been fighting his plan’s decision, waiting months for judges who aren’t medical experts to determine his medical fate.
Fallstead is among roughly 2 million Medi-Cal recipients who must use a different medical appeals process than most others. Medi-Cal is the state’s version of the federal Medicaid program that provides health insurance to low-income residents.
These Californians live in 22 counties, from Orange County to the Central Coast and rural Northern California. Unlike about 8 million other Medi-Cal enrollees in managed care, most of them can’t appeal their case to an independent physician.
Advocates, patients and some lawmakers say this has delayed critical treatments and is simply unfair.
“There should be uniformity in the protections of all Medi-Cal recipients,” says state Sen. Bill Monning, a Democrat whose district covers three affected counties: Monterey, Santa Cruz and San Luis Obispo.
Today, I’ll explain this inconsistency and offer advice to those people it affects.
Q: I live in Orange County and have Medi-Cal. I’m in the middle of cancer treatment but my health plan is making me get reapproved before I can continue. What are my options?
A: If your medical plan makes a decision that you disagree with, such as not covering the medication or therapy your doctor has ordered, you usually start by appealing with the plan itself.
If the plan won’t budge, you move to the second level of appeals. This is where the difference lies.
The vast majority of managed care Medi-Cal recipients are in plans regulated by the state Department of Managed Health Care. They have access to something called an Independent Medical Review (IMR), which allows them to appeal their plan’s decision to an independent physician (or physicians) who are experts in the conditions being reviewed.
If your health issue is urgent, you can request an expedited IMR to be conducted within a week.
If it is not urgent, it is usually decided within 30 days.
But Orange County managed care Medi-Cal recipients receive coverage through a plan called a County Organized Health System (COHS).
There are six COHS plans, including CalOptima in Orange County and Partnership HealthPlan, which covers 14 Northern California counties. If you’re in one of these counties, your local COHS plan is the only Medi-Cal plan available to you.
These publicly operated plans were exempted from certain requirements more than 30 years ago when they were much smaller entities.
That means you don’t have access to an IMR for your second layer of appeals. You must request a state fair hearing and plead your case before an administrative law judge who usually is not a medical expert.
The cases must be decided within 90 days after the Medi-Cal recipient requests a hearing, says Michael Weston, spokesman for the state Department of Social Services, which conducts the hearings.
An enrollee whose health is in danger from delay may request an expedited hearing. If a judge agrees, a hearing will be scheduled within 10 days of the request and a decision rendered within five days after all evidence has been submitted, Weston says.
(There is an exception. The Health Plan of San Mateo, a COHS plan, has voluntarily agreed to be regulated by the Department of Managed Health Care, so its enrollees can request an IMR.)
It feels like I’m not a person to them.
Ben Fallstead, patient fighting to continue using an effective antibiotic under his managed care Medi-Cal plan
Fallstead, the Lake County man who has babesiosis, has requested two state fair hearings in the past two years. Both took longer than 90 days to resolve.
“I feel like they’re denying me medication,” he says. “It feels like I’m not a person to them.”
Liza Thantranon, Legal Services of Northern California’s managing attorney for health, says she deals with this problem every day.
Her clients who have access to IMRs usually are able to resolve their cases within a month, she says. However, the majority of her COHS clients who request state fair hearings wait more than 90 days for a decision, some as long as six to eight months.
“In the middle, you have administrative law judges trying to evaluate which doctor is right,” Thantranon says. “They don’t know what the science is.”
Weston counters that the judges are trained to make “factual findings based on evidence, including the medical evidence provided by the plan and the doctor.”
The plans say they’re not against regulation, but over-regulation. They’re already regulated twice, by the federal and state governments, says Bob Freeman, CEO of CenCal Health, the COHS plan that covers about 165,000 Medi-Cal enrollees in San Luis Obispo and Santa Barbara counties.
Adding this additional layer of regulation would require them to pay about $4 million collectively in fees each year to the Department of Managed Health Care, he says.
“Where’s the value to the taxpayer in that?” Freeman asks. “That money could go somewhere else.”
For those of you who are in a COHS plan, here are some tips on the appeal process:
If your plan denies the initial internal appeal, ask it to review its decision. At the same time, immediately request a state fair hearing. You can always withdraw from the hearing later if you’re able to resolve the problem directly with your health plan.
Request a state fair hearing by calling 855-795-0634 or email your request to firstname.lastname@example.org.
Before your hearing, gather medical evidence to bolster your case. “Ask your doctors to write letters of support,” Thantranon says. Your doctor can also participate in the hearing by phone, Weston says.
Get help from health care advocacy groups. The Health Consumer Alliance is a good place to start: healthconsumer.org and 888-804-3536.
If you’re unhappy with the state fair hearing decision, you may be able to request a rehearing or take your case to civil court, Weston says. You also can contact the Medi-Cal Managed Care Office of the Ombudsman at 888-452-8609 or MMCDOmbudsmanOffice@dhcs.ca.gov.
Emily Bazar is a reporter with the California Health Care Foundation’s Center for Health Reporting. Contact her: AskEmily@usc.edu. The CHCF Center for Health Reporting partners with news organizations to cover California health policy. Located at the University of Southern California Annenberg School for Communication and Journalism, it is funded by the nonpartisan California HealthCare Foundation.